Saturday, February 04, 2012

Posts Tagged ‘communication problems with aging parents’

The Wrong Signals: Shutting Down Change Before It Starts

How do we help our aging parents consider making positive changes in their lives? We want to help, and feel we have good ideas that could improve their quality of life. For example, we would like for them to consider:

New support services to enhance their “aging in place” environment
New lifestyle changes to protect and improve their health
New living accommodations to put more fun back to their lives as well as reduce isolation and loneliness
New long-term care options to better prepare them for major setbacks

But many times our attempts to discuss these and other “change topics” are met with extreme push back that includes indifference, rejection, and hostility. Despite the constant media prompting to have “the talk” with our aging parents and despite our best intentions, we wind up sending out the wrong signals that are show stoppers instead of conversation starters. Why is this happening and what can make it better?

An extremely valuable book written for healthcare professionals may hold the part of the answer. It is called Motivational Interviewing in Health Care: Helping Patients Change Behavior. The authors offer new insights and strategies for discussing change topics in a clinical medicine setting. It appears that their approach could be equally useful to adult children of aging parents. Here are some highlights from the book that seem especially relevant for all caregivers.

The Change Dilemma

It doesn’t matter how obvious it seems that change would make things markedly better for our aging parents; it is hard for everyone, period. There is a deep inertia to change that anchors all of us to what we have always done. With aging parents, there is the added inertia to change that comes from their developmental need to maintain control in a world where all control is being lost. Change is a threat to control and is viewed with suspicion. So it is unrealistic and impractical to assume our aging parents will suddenly be “change friendly” just because they are older and have glaring issues that could benefit from something new. But as Motivational Interviewing in Health Care so effectively points out, the real six-hundred-pound-gorilla in all of these conversations is the quagmire of ambivalence.

Ambivalence

The insights and practical advice on ambivalence alone is worth the price of Motivational Interviewing in Health Care. It turns out that ambivalence lurks behind all change conversations and can be provoked by our attempts to argue away our parents objections to change. These are those unsolicited lectures we give our aging parents to inform or direct them to do something different. I call this all to common habit of adult children the “better answer” syndrome. This is code for “I know what’s best, please pay attention.”

But instead of consensus, it only provokes the dreaded righting-reflex that entrenches our aging parents into arguing against the suggested change, moving the conversation from uncomfortable to communication gridlock. Thankfully, the authors offer an effective, non-intuitive approach to work around this all too common dilemma.

Change Rapport

Motivational Interviewing in Health Care makes it clear that our goal is to avoid triggering the righting reflex and make an honest effort to understand our aging parent’s point of view. This involves finding out what they are actually experiencing and then signal that we are listening and get it. Within this non-triggering conversation environment, we can begin to test open-ended questions about issues where change might be useful to increase long-term control. Here are some simple examples:

How are you doing?
What’s worrying you most today?
What do you think would make this better?
How have you been feeling?
Tell me more…
What’s new with your friends?
What do you feel like doing?

Open-ended question invite our aging parents to choose the direction of the conversation. Once they pick the direction, we simply reflect back their thoughts and comments to indicate we are listening and understand their point of view. Although tempting, we need to resist the temptation to interrupt. Interruptions only make matters worse. We need to hear the whole story on a topic. But as the authors point out, we are listening for more than the story. We are listening for “change talk.”

This may be the most important benefit caregivers receive from reading Motivational Interviewing in Health Care. Change talk is where aging parents begin to voice some interest in change. It is a soft signal, more a preliminary musing about what if, wouldn’t be nice, I really need to, it would be better if, and I am sure I can, all examples of change talk phrasing. The most important thing about change talk is that our aging parents are exploring the other side of their ambivalence to change, speculating on how or why it might be worth considering. How we respond to these pre-change-exchanges will have an enormous impact on whether or not change actually occurs.

Motivational Interviewing in Health Care offers a detailed explanation and ample examples of how to develop these moments of change talk into positive changes. Despite its focus on clinical encounters for healthcare providers, it offers adult children a compassionate and effective strategy to explore change topics in a non-threatening, parent-centric style. It is an approach could be a game changer for adult children searching for a new way to help their aging parents make positive changes.

Hospital Quicksand: Words Are Not Enough

I was asked for suggestions on how to help seniors preserve control in a hospital setting where all control quickly vanishes. Interesting question I thought. What would make things better? And then I remembered David.

David is a friend of mine who suddenly fell into frightening rabbit’s hole when he was being worked up for cancer. What was supposed to be a routine out patient biopsy triggered a medical crisis that sent him directly to intensive care. Thankfully he clawed his way back out of this nightmare after weeks of doom, gloom, and what seemed like endless setbacks. But he said something to me during one of my visits that gave me a jolt of fear and insight. “I losing track of what is happening,” he said in a medicated monotone. “I am losing my ability to figure things out.”

This disorientation happened to a middle-aged, educated, no-nonsense adult. What happens if you wind up in the hospital at advanced age, wrestling chronic illness, and overwhelmed by the healthcare system? Now what?

It turns out, words are not enough. With so much information coming at hospitalized seniors from all sides and wrapped in medical jargon, seniors quickly get overwhelmed. They need a better way to manage information. Enter the lowly dry erase lapboard. This simple yet elegant white 9”X12” melamine hardboard turns out to be an ideal control preservation tool. Here’s how.

Ellen’s mother was admitted to the hospital for suspected congestive heart failure. Her mother was anxious and having a hard time understanding all the things that needed to get done for the medical work up. Sitting on the edge of her mother’s bed, Ellen used a dry erase lapboard to outline out what was going to happen and why. It looked liked this:

1. CXR > Lungs > Any Fluid?

2. Echo > Heart > How Strong?

3. Test > Blood > Any Problems?

As she outlined one item at a time, Ellen’s mother had questions. “Let’s find out,” Ellen told her. Knowing what is going to be done and in what order is the first step in regaining control. The dry erase lapboard provided a visual aid to decode the process and resulted in a fundamental shift in the balance of power for Ellen’s mother. The same approach was used throughout her hospital stay and at discharge.

Here is what the dry erase lapboard outline looked like on the day Ellen’s mother was discharged:

1. New Medication > Reduces Fluid Build Up >Take One Every Day

2. Walking > Strengthens Heart > 15 Min, Twice A Day

3. Follow Up > Family Doctor > Two Weeks

The board costs four dollars. The marker two dollars. The ability to understand and preserve control: priceless.

Here is a good place to get the boards: http://www.dryerase.com/blank.htm

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Communicate

No Money: No Comment

I was recently asked what to do about aging parents who had little or no savings but refused to discuss any aspect of their “money issue.” It reminded me that our role as adult children is not necessarily about problem solving; it is about compassionate containment. So many of the issues we feel compelled to “fix” have no clear answers. The best we can do is sort out what to accept from what we can actually change. Here was the advice I offered:

The issue of money, like so many other issues in the last phase of life, is about control. The best way to approach it is to reframe money as means of maintaining control. Lack of money takes away control. This link http://www.dsolie.com/articles/reframing.html will take you to an article I authored on “communicating touch choices” that offers a practical strategy for how to do this.

You may also want to consider three strategies that will help you “hedge” your parent’s financial risk:

1. Buy a long term care policy with a two years home care/two years nursing home benefit. This assumes they will cooperative with the process (i.e. signing the applications and answering questions).

2. Start funding a dedicated “side fund” for expenses that a long term care policy will not cover.

3. If you parents own their home, become familiar with how “reverse mortgages work and when they make sense.

Lastly, you need to began discussions with local area agencies on aging to determine what, if any, community resources can assist your parents if they run out of money.

This is a tough end-game, especially if you parents don’t want to talk about. The article will help you frame your conversations. Be patient but persistent in your discussions about control and your desire to help them maintain it.